RI Law Creates Rare Disease Advisory Council
Warwick ‘lights it up’ to surprise 6 year old with rare lung disease.
State House lights up to honor boy with rare disease
Small But Strong: Warwick boy doesn’t let rare disease stop him from enjoying life
A Warwick boy, a rare disease, and a family’s unrelenting hope
A worry you didn’t even know was possible: Raising a child with a rare, deadly disease
