March 6, 2025 Warwick ‘lights it up’ to surprise 6-year-old with rare disease

February 14, 2025 State House lights up to honor boy with rare disease

February 9, 2025 Rhode Island State House lit up for Breath of Hope RI

May 17, 2024 [Video] Small but Strong: Warwick boy doesn’t let rare lung disease stop him from enjoying life

May 15, 2024 A Warwick boy, a rare disease, and a family’s unrelenting hope

March 13, 2024 A worry you didn’t even know was possible’: Raising a child with a rare, deadly disease